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The Network of Tyrosinemia Advocates, known globally as NOTA Cares, is an international nonprofit dedicated to supporting people affected by Tyrosinemia, a rare genetic metabolic disorder. What began as a Facebook support group has grown into a trusted worldwide network offering resources on early diagnosis, treatment, NTBC therapy, and dietary management. Through educational initiatives, advocacy programs, and awareness events such as the NOTA Experience, the organization empowers families, builds strong community connections, and promotes better care.
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